Something that amazes me about Coeliac disease is the number and variety of symptoms.
I was first tested because I was anaemic and I had a vitamin D deficiency. As I mentioned in my first post – I didn’t go through with the full test, as eating a high wheat diet made me so ill so quickly. It could be that I have a Gluten Intolerance as opposed to full blown Coeliac disease, but at this point in my life (and on the advice of my doctor) I’m not prepared to go through the pain to find out one way or the other. I did have a blood test, which showed a negative result. When I looked closely at my diet (other than the enforced 6 day binge) I hadn’t been eating much gluten at all for months (because it made me feel bloated and ‘brain-foggy’) so the doctor wasn’t surprised by the negative result, and I’ve since learned that a false negative result isn’t uncommon.
If you are suffering from a variety of these symptoms (see picture below), go and talk to your doctor about it – if you’re eating gluten, don’t stop until after you’ve been tested, as your sensitivity gets more pronounced when you stop eating it, so you won’t want to go back!
Personally, the benefits I feel of going gluten free FAR outweigh any inconvenience. I went from being permanently ill with cold after cold, various allergies, issues with my joints, gynaecological issues, to being overwhelmingly fit and well in the year since I quit gluten. It hasn’t made me super-woman, but it has put a spring in my step!
Gluten Dude surveyed 130 of his readers and this picture shows the most commonly reported symptoms. Of course, a lot of these things can come from other things too, but I know there are a few things here that ring true to me after having been ‘glutened’.
Courtesy of @glutendude
Everything I’ve tried to write for this blog so far, I’ve read back and rejected, so this time I’m just going to write something, hope it’s not too awful and just post it, in the hope that someone other than my Mum, boyfriend and a few supportive friends might read it. Thanks for sticking with me so far!
I was ‘diagnosed’ with Coeliac disease in January 2013 – the inverted commas are there because I never went through with the full test. To be tested (which most of you reading this will already know) you have to spend 6 weeks eating a high gluten diet. I lasted about 6 days and pretty much had a full scale meltdown. Not only were there the physical symptoms of bloating, upset stomach and headaches, but it also caused my anxiety levels to peak and periods of IRRATIONAL ANGER!
If you follow me on twitter, you may have noticed that my header description (is that what it’s called?) bares an uncanny resemblance to that of Bruce Banner – The Hulk. Basically, that is how Gluten makes me feel – I swell up and I get really pissed of – really quickly, often followed by nasty feelings of depression and anxiety – not nice! Was interested to read recently that I’m not alone in this – take a look at Jane Anderson’s blog – I’m not sure how wide this study was, but it’s nice to know someone is looking into it!
Having been living on a gluten free diet for around 15months now, I’ve come to the conclusion that it’s not all that bad. It doesn’t have to be difficult. It doesn’t need to be expensive. It does mean a bit of extra self-control and it does mean planning ahead if you’re going on a long train journey, but it is manageable.
Oh yes, and friends and loved ones will think you’re the biggest fuss-pot on the planet, that you’re making it up, that it isn’t that bad. But they learn. They don’t like me when I’m angry.